Students under our daycare

NagammalNagammal
was born in 1989 in the nearby village into a family with three older brothers. She was unwanted and her mother had tried to abort her. When she first came to the “Old Playground” she was about 3.5 years old and was not able to walk because of severe undernourishment. She was weak and constantly ill. Over the years she has needed a lot of health care for all kinds of diseases including tuberculosis. Since 2003 we were able to offer day care and lunch which helped her to stabilize in her health. Nagammal was our first child with hearing impairment. At that time, we had no experience with hearing aids and speech therapy. It was a long process until Nagammal finally received her first hearing aids when she was around 5 years old. For the testing and purchasing, we had to go to Chennai which was at that time a 4-5 hours drive on terrible roads. Nagammal is mentally fine but is very shy. She has profited most from our program over the years. Selvi taught her reading and writing at Deepam, although she is not able to talk properly because she got her hearing aid too late and had no family support. We have taught Nagammal various handicrafts such as embroidery, greeting cards design and candle-making. Meanwhile Nagammal is much more confident and became a great help with the smaller children. At Deepam Nagammal feels safe and well respected. We have an agreement with her parents that Nagammal can stay at Deepam for continuous health-care and as a helper. She has her own saving account where we put a monthly contribution for her future needs.

Ramesh
was born in 1982 and from 1992 came to our “Old Playground”. He was a shy, weak-looking boy who never talked much. Ramesh’s father has died of tuberculosis in 1994 and had infected Ramesh who was treated with long courses of medication for tuberculosis in 1995 and 1997. Ramesh was delayed in his development and often sick with bronchitis and fever. One doctor once told us that Ramesh has the lungs of a very old man. At school he was irregular and not much interested in education. In 1996 he finally dropped out of school and joined Deepam. When he became older Ramesh started helping one of his brothers who is a carpenter. We were happy that the family took responsibility for Ramesh but often we saw him hanging out in the village. In 2010, when he was already 28 years old, his mother brought him unexpectedly back to Deepam. Ramesh was obviously very unwell with swollen feet, bad skin and had hardly any teeth left. We were reluctant to take him back after so many years and so we made it a condition that he first go for a health check-up. The haemoglobin level of Ramesh’s blood was less than 5 mg and required iron injections for his anaemia. His mother confessed that he had consumed only sweetened milk-tea and white rice over a long period of time. We scolded her severely and gave her a detailed lesson on what is needed to eat in order to stay healthy. At Deepam Ramesh started eating healthy snacks and the midday meal and we watched that he did not throw away the vegetables and salad. Slowly we gave him little jobs to do and meanwhile he is part of our garden crew, sweeping leaves and taking care of watering and weeding.

Sundar
was born in 1985. Being severely mentally challenged he is limited in all his skills. Over the years, we have managed to teach him the basic colors and counting up to 20. Sundar is able to do small jobs at Deepam and manages well socially. His concentration span is extremely low and he will be never able to go for outside work. Nevertheless, Sundar is always in a good mood and his singing for the full day can be rather annoying. In the village he is always seen on the road and accepted by everybody for his good nature. Sundar is certainly one of the most happy beings!

Anjalai
Was probably born in 1985. Her mother does not remember exactly when Anjalai was born and she has no birth certificate which is not unusual in these local villages. Anjalai was a normal child until she contracted brain fever when she was three years old and became half-side paralyzed (hemiplegic) and mentally challenged. She is limited in all her skills such as language, fine motor skills and concentration. Anjalai does not get much support from her family. Her parents are not educated and and very poor. They find it hard to accept having a grown up daughter who cannot get married and will be not able support them for their old age. We support Anjalai for physiotherapy, health-care, food and housing.

Vinoth
was born in 1989 being mentally challenged and with a modest hearing loss. He has speedy mannerisms but is quite skilled with his hands. We had managed to integrate him gradually into a pottery but it seems the work there was too hard for him and he missed some personal care. He doesn’t fit anymore in our day-care group with smaller children. Many times we have discussed at our weekly team meetings how to proceed with Vinoth until finally we made him a helper at Deepam itself, which seems to have worked out well a long as he gets a minimum of supervision. He keeps our garden clean and participates at the same in some group activities and receives regular meals. Vinoth dreams of having his own cell-phone and motorbike. For his future needs we have helped him to open a saving account in his name and we pay him a monthly contribution from Deepam for his work. Additionally he gets a weekly pocket-money to be spend how he likes it.

Akash
was born in 2002. He had epileptic fits immediately after he was born and needs to take continuous medication. Akash is mentally challenged and has a behavioural disorder with autistic features. He comes from a poor family with uneducated parents. His father is addicted to alcohol and does not help much to raise his children and his mother needs to work to sustain the family. We have known Akash since he was about 2 years old when he first came as an outpatient to Angelika for occupational therapy. It was not possible to work with him continuously. Unfortunately, Akash had often severe epileptic attacks and also became very sick with recurrent fevers and it took months to find out that he had a specific type of tuberculosis infection. For nine months he was under strong medical treatment. To ensure that others did not contract tuberculosis, he could not come to Deepam during this period. Meanwhile his mother found it more and more difficult to manage her son. She wanted to admit Akash into a boarding school, but he was refused because of his challenging behaviour. Therefore our team decided to try out taking Akash into our day-care program. This was a real challenge in the beginning as Akash needed one person to constantly watch him. He refused eye contact, was not toilet trained, was beating and provoking other children, disturbing and not participating in activities. Slowly his social behaviour improved and in individual sessions we focused on simple tasks to enable him to cooperate and concentrate. Meanwhile he has made astonishing progress and is participating in all the activities.

Sarasu
was born with severe hearing impairment in 1998. When Sarasu was 1.5 years old her mother brought her to us because she had noticed that her daughter did not respond to sounds and did not start talking. The audio-metric tests confirmed that she is hearing impaired and we have helped in purchasing her first hearing aids as well as the moulds which needed to be specially shaped according to her ears. These moulds needed to be replaced each time her ears grew bigger. After several months the family situation worsened. Sarasu’s father was drinking more and more and her mother needed to go to work to provide for the family. Meanwhile her younger sister was born. Therefore we decided to try out paying Sarasu’s mother for each day she came with Sarasu to us for speech-therapy. This worked out very well for some time. Sarasu received daily sessions with Selvi and some sessions with a professional speech-therapist from outside. Within a few months Sarasu acquired all the sounds necessary to speak Tamil. At that point, we helped to send her to a special school in Pondicherry with the idea of providing her with a better future. Unfortunately her father then committed suicide and her mother asked us for help to admit Sarasu to a hostel as she did not see a better option at that time. One year later, it became clear that Sarasu was at the hostel even not allowed to wear her hearing aids and that she received no training. We took Sarasu back at her mother’s request. But Sarasu had lost precious time – she could not speak anymore and the training had to be started all over again.  Also she had become quite restless and unfocused. The family’s housing situation was terrible. Together with the old grandparents they were living in a tiny hut. With the help of a kind person from Auroville it became possible to provide a small house for them. Steadily Sarasu was progressing well over time. She got more focused and is able to read  and write Tamil. In Maths she is able to do multiplication. Sarasu became a smart teenager with a strong will. Over a period of two years she was gradually integrated into the Life Education Centre(LEC), where she receives training in handicrafts and tailoring. Sarasu is praised for her skills and is meanwhile able to stitch her own panjabis (pants with a knee-long top). We are confident that she will be able to earn in future her own living.

NishanthNishant
was born in 1999 with Cerebral Palsy(spasticity of muscles). He lives with his grandmother. When Nishant was 5 years old his grandmother brought him three times a week to Deepam for intensive physiotherapy until he was able to walk short distances, first with the help of calipers, later even without appliances. The spasticity of his leg muscles is severe – therefore his walking does not look very elegant and he needs to continue with specific physiotherapy exercises. Nishant followed for many years mainstream schooling, but as he is a slow learner and often inattentive, he did not pass the exams. Since 2012 Nishant attends, on his own wish, the day-care at Deepam where we provide physiotherapy and basic education in individual sessions. In the last years were there many complaints about Nishant’s motivation and progress. Only recently Nishant comes more out and gets a lot of praise and recognition for his efforts. He is more interested in physiotherapy as he wants to look pretty and wants to walk straight. Nishant shows also more interest in doing vocational training, especially he likes the computer class. “I want to walk straight and be tall. Now my height is 5 feet and 2 inches. My favourite is the computer training at Deepam. In future I would like to run my own shop in the village, selling spare parts and recharge for cell phones.”
We would like to equip Nishant with some skills which enable him to manage his life later on his own.

 

Nandini
has been coming to Deepam for physiotherapy first in 2004 when she was nine months old. She did not have a smooth start in life; while pregnant with Nandini, her mother attempted suicide by burning herself with kerosene and was hospitalized with 42% burns. Nandini was born prematurely with multiple disabilities (Cerebral Palsy and Microcephaly). Since we have known her, Nandini has been undernourished and suffers from intestinal parasites. Her father is severely addicted to alcohol and does not work anymore. She has two younger brothers who attend regular schools. Due to the family problems Nandini came very irregularly for her therapy sessions. Only when Nandini was seven and mature enough to join in progressive steps our day-care programme has she picked up significantly. Having no toilet at home and being delayed in her development, training her to use the toilet on her own was an enormous challenge. In 2016 we were able to help Nanadini’s family to build finally their own toilet. Nandini loves to be in the group with the other children and is making steady progress. With her shiny eyes and her happy being, she is a ray of sunshine here at Deepam.

 

Santhiya
came first to us when she was two years old. We remember her as a dirty little girl who always had a running nose and was often sick. She was undernourished, tiny for her age and had continuously different types of intestinal parasites for which she got medical treatment. Santhiya’s parents are blood related. Born in 2003, weighing only 1,900 grams she was kept in an incubator for one week. Although she has made a lot of progress since 2009, when we integrated her in into our day-care group, she is still very low in her mental abilities and in her motor-skills. Meanwhile she can identify colours, is able to match shapes and other objects and uses simple language and gestures to express herself. The test results confirmed that her hearing is fine but that she has a so-called sensory hearing loss. This means that what she hears is not processed well in her brain and therefore she needs a lot of extra stimulation to learn to speak. Toilet training remained a constant challenge as she was used to defecate in the open. Another draw-back for Santhiya is her delicate health – still she is often sick. In 2011 she was diagnosed with Primary Complex (the beginning of TB) and was given a full course of tuberculosis treatment. Meanwhile she picked up in her physical condition but is still far too small for her age. She is also more concentrated and progress is seen in many areas. Santhiya is liked by everybody for her lovely being.

 

Ruthrapathi
whose parents are related to each other was born in 2003 with a profound bilateral hearing loss. He has one younger sister. His father is living with another woman and does not take care of his children. Ruthrapathi’s mother labours for a daily wage on construction sites to earn a living for the family. Ruthrapathi never went to school and was left on his own during the day. Only when he was eight years – for the first time – he was given hearing aids by us. Ruthrapathi loves his hearing aids and is very proud of it. The process of learning to speak will be difficult as he has received his hearing aids very late. It requires a lot of effort and patience from him and our team member Gopal, who does speech-therapy with him. After some months Ruthrapathi was able to pronounce words and most of the letters of the Tamil alphabet. Ruthrapathi had to be integrated in the group where he had to learn better social behaviour such as learning to wait or take others into consideration. We also had to teach him how to use a toilet. With the food provided at Deepam he has been putting on weight and looks much healthier. Ruthrapathi benefits from the various activities at Deepam. Meanwhile he is able to read and write single words in Tamil. He loves handicrafts and is the one who is most skilled to use our pedal saw to cut beautiful things out of plywood. We focus for him on early vocational training with the aim to integrate him later in the outside world and manage his own life.

 

HemaHema
was 4 years old when she was referred to us by her Kindergarden teachers in 2009. We recommended doing an audiometry test which confirmed that she was hearing impaired and that she needed to wear hearing aids and she would require intensive speech therapy. Her parents were informed about few special schools, which are further away, and provide especially education for hearing impaired children. As Hema is quite speedy and unfocused her parents decided that Hema should join our day-care programme at Deepam where she would get individual attention and would also get daily sessions of speech-therapy with Selvi and Gopal. After two years and considerable progress, we suggested that Hema should have a trial to re-integrate in the mainstream school. Aikayam School was ready to accommodate Hema into the first grade. We continued to assist Hema in the afternoons for speech-therapy, her home-work and for the maintenance of her hearing aids. Unfortunately Hema’s parents gave little support for her home-work and after several months the teachers gave up as Hema was not able to follow in class. Now Hema is the full day at Deepam where she gets weekly a few sessions, on one to one basis, where she learns to read and write Tamil and basic Math. Hema profits from the different activities which are offered at Deepam. Meanwhile she has become much more handsome, content and concentrated. Also she is talking much more and well articulated, especially as we were able to provide her high quality hearing aids which were donated for Hema. She can read full chapters in Tamil and write complete sentences. In Math she can do all the simple operations.

 

Dharani
was born in 1997 and came first to us for physiotherapy when she was 2 years old. She suffers from epilepsy and is under constant medication. For some years Dharani was in mainstream schools but, as she is developmentally delayed, she was academically behind her peers. When she was twelve she finally joined our day-care group and she was barely able to write her own name. In the outside school there was no appropriate help for Dharani who requires more individual attention in order to be able to focus and to progress. Over a long period of time Dharani showed strange social behaviours, refused to participate in group activities and withdrew inwardly. Our Deepam team closely monitored and supervised Dharani to better understand how to support her development e.g. she was sent for some art-therapy sessions to support her emotionally.
Dharani’s father died in 2004 of HIV and her mother was left with four adolescents. Dharani has two older sisters and one younger brother. They were living in a one room house made out of mud with a thatched roof which was leaking badly and was temporarily covered with a plastic sheet. In the tropics there are long periods without rain but the monsoon rains are extremely heavy. In 2011 we were able to help Dharani and her family, with funds from Deepam, create a solid house.
Finally in 2013 Dr. Peter Prashant, the pediatric doctor from PIMS hospital who supports us tremendously, diagnosed Dharani with Sturge-Weber Syndrome which explains her medical condition. It is a congenital disorder (by birth) which is always accompanied by a red birth-mark on the face. Complications are calcifiction of tissue and loss of nerve cells in the brain, on the same side of the head as the birth mark, which often results in seizure disorders and muscle weakness on the side of the body opposite to the birth-mark. Another complication can be glaucoma which can lead to blindness. Therefore we make sure that Dharani’s eyes get checked regularly. Despite all of this Dharani has made incredible progress in recent times. She is ready to work harder to achieve something and participates more actively. We are very proud of her and encourage her a lot.

JayasudhaJayasudha
was born in 1984 with cerebral palsy. She has difficulties in coordinating her muscles properly due to spasticity and was not able to learn to walk. She is confined to a wheelchair. Though mentally normal she never went to school. When we first met Jayasudha she was about 16 years old living with her grandparents (her mother’s parents) who expressed constantly that it was a real burden having to take care of her. Her father died at an early age. Her mother continued living with her two daughters at the in-laws house. One day when Jayasudha was 9 years old, her grandmother had intentionally put petrol in the kerosene stove and when Jayasudha’s mother came home from the market to cook she caught fire when she lit the stove. Jayasudha was sitting in front of the house and watched helplessly as her mother died. For some years Jayasudha attended our day care program. She received intensive physiotherapy and learnt reading and writing and to do different handicrafts. We were at first relieved when Jayasudha started to live with her sister who, meanwhile, was married and had three small children. Unfortunately her sister then started using Jayasudha as a baby sitter and did not allow her to come regularly to Deepam. Finally when her sisters children were all attending schools, Jayasudha began coming again regularly and has improved thanks to the daily exercises with Joyce, our physiotherapist at Deepam. With the help of calipers, Jayasudha can meanwhile walk some steps. Even though this is hard work her face radiates joy.

Suresh
was born in 1991 with a profound hearing loss. He is not able to hear without strong hearing aids. He attended our day care from 2003 – 2008. Suresh comes from a poor, uneducated family and did not show much interest in reading and writing, but performed well in creating handicrafts. We taught him basic craft techniques and arranged for him to attend carpentry training at Svaram, where musical instruments are produced. He gradually became more integrated there and they offered to employ him. Everybody was proud of him and we continued to support him for the maintenance of his hearing aids. Suresh was our “success story” until he started stealing at his workplace on several occasions. He got warnings and chances but finally he was sent out. As Suresh has hardly any family support and has friends who abuse alcohol we have decided to continue with him at Deepam. For several years he was one of our gardeners and received pocket money, lunch and health care. Suresh stabilised and we found that it is time to try again to integrate him in the outside world as he should lead a normal life. In 2015 we found a plumber who took him under his care. Suresh became his helper and receives a salary for his work. We hope this will work out well for him.

Chandru
was born in 2007 with Down Syndrome, also called Mongolism or Trisomy 21. Since the age of 1.5 he has been coming to Deepam regularly with his mother to receive physiotherapy and general stimulation. Chandru is delayed in all his milestones and we need to focus on the development of his speech. He is an extremely sweet and smart boy who is liked by everybody for his charm. His mother was still helping him a lot when he grew up and we insisted that he be toilet trained and that he learnt to eat alone and dress on his own. Our aim was to integrate him gradually into our day-care programme which is proving more difficult than we had expected. Chandru’s behaviour is at times challenging as he does a lot of nonsense and adults tend to find this funny as he is kind of cute. We have talked several times at Deepam and made it very clear with his parents that we all need to have a clear and firm approach with Chandru in order to guide him and help him to develop appropriate social behaviour.

Vinoth
was born in 2008. He has one older brother. His family is from a poor background. Vinoth’s father works in a shop for a daily wage and his mother is at home looking after her children. Vinoth was referred to us in 2012 with the complaint of not talking. He would express his needs only through gestures. His mother reported that Vinoth could have lost his hearing during a heavy thunder storm when he was 3 years old. This did not sound convincing to us, especially after we found out that his mother took pills to attempt suicide when she was 5 months pregnant with Vinoth. The audiometry report confirmed a profound hearing impairment. Vinoth came for some time regularly to Selvi for speech therapy. It takes a long way to learn to speak with the help of hearing aids. In the beginning he was very shy and refused to make eye contact and hardly opened his mouth. Meanwhile Vinoth participates in all the activities of our day-care group and continues to have sessions for the development of his speech. Gopal is also teaching him to read and write Tamil. Vinoth is still rather shy and withdrawn, but he is an excellent observer with his big shiny eyes.